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The Luca Miraglia Foundation

ABN 29 264 591 963

The Luca Miraglia Foundation was established to support Luca Miraglia and other children like him in similar necessitous circumstances. Funds donated to the Foundation will support Luca and others in the areas of:

• Autism Spectrum Disorder (ASD) and Intellectual Disability
• Hearing Impairment
• Chronic Kidney Disease
• Neonatal Intensive Care

The Foundation was established in late 2014 and is a registered not-for-profit charitable organisation and an ATO endorsed Deductible Gift Receipt (DGR) fund. Donations over $2 are tax deductible. Australian Charities and Not for Profit Commission registration details

Trustees

The Foundation is administered through independent Trustees with a strong community focus, carefully selected to ensure that the Foundation is run successfully.

Aristea Porfiri

Brad Turney

Daniel Minihan

We are delighted to be part of the Luca Miraglia Foundation raising valuable funds for Luca and other children in similar circumstances. Although his start in life was incredibly tough, Luca has come a long way and is a true example of the “Fighting Spirit”.”
TRUSTEES
About Luca
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Luca Boris Miraglia’s birth was traumatic. His identical twin brother Alessio died only hours before they were born. Luca spent 6 weeks in the Neonatal Intensive Care Unit (NICU) at the Royal Children’s Hospital. He had suffered oxygen deprivation resulting in chronic kidney failure that required dialysis. He had brain damage and experienced constant seizures. After dialysis, a life-threatening infection required toxic antibiotics.

Luca was fed through a naso-gastric tube until he was one year old and vomited almost daily until he was two. He was diagnosed with severe to profound hearing loss at three months old and autism spectrum disorder around his fourth birthday. All his major developmental milestones were delayed.

“Luca was incredibly sick and I can tell you that in the 10 years I’ve been working there, there have been very few babies that I have looked after that have been as sick as Luca.”
– Dr Rod Hunt, Director of Neonatal Medicine at the Royal Children’s Hospital

From this beginning it is hard to believe how far Luca has come. He has achieved milestones feared impossible when he was born. He is fully verbal, with near to full speech range. He integrated into mainstream school and is now attending senior school. He is an active and engaged young man, who after enduring peritoneal dialysis for 15 months when he became a teenager, was given the gift of a live kidney transplant in August 2021. He continues to thrive and embrace all opportunities whilst facing challenges with resilience and a sense of humour.

Luca couldn’t have achieved all this without years of intensive behavioural intervention and medical treatment and support. He has had amazing professionals helping him through each challenge, going above and beyond to give him every opportunity to develop and grow. The difference this makes is why we devote so much time to raising awareness and funds to support these treatments and experts.

Luca the Little Tiger has pounced on life with his fighting spirit. Watch Luca tell his story in his own words:

Royal Children's Hospital (RCH) Butterfly Ward Bed Sponsorship
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Each year, we provide a sponsorship to the Roya Children’s Hospital for their Butterfly Ward.

 

If you are able to spare a few dollars to help us reach our $7500 target we would be most grateful.
Many of you will know of the wonderful life-changing gift that Luca received last August – a live kidney donation – which enabled Luca to come off life support equipment (peritoneal dialysis) and begin a new phase of his life.
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The Royal Children’s Hospital were instrumental in making this possible and their expert care was critical in not only performing the transplant but also in overcoming further challenges along the way and in recent times.
However our close relationship with the RCH began when Luca was in the Newborn Intensive Care unit, critically ill and facing what seemed to be insurmountable odds. He is with us today thanks to the dedicated brilliant medical staff that saved his life.
Luca is only one of thousands of babies, children and teenagers who have access to this level of world class care.
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Indeed we personally know of a little bubba and a family that is in a very scary and uncertain situation not dissimilar to the the one we found ourselves in almost 15 years ago. They too are receiving the gold standard treatment that Luca did as well as every other baby that arrives in the Butterfly Ward. We want to ensure this leading edge critical care continues.
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Luca is living proof that the RCH will do everything possible to give every child the very best chance at life. And we will never forget how it all started. This is why we are committed to continuing to sponsor a bed in the Newborn Intensive Care Unit (Butterfly Ward) and hope you can help us in providing this ongoing support.
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All donations are tax deductible so now’s the time!
The Tiger and the Butterfly: Luca and Alessio
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Luca’s first six weeks of life in the NICU were fragile. He was very ill and his survival wasn’t guaranteed. He surprised everyone (doctors, nurses, his parents) with how tough he was. One of his doctors nicknamed him Little Tiger because he was such a fighter, and this is the origin of the Fighting Tiger icon in the Foundation’s logo.

In hospital, Luca was given a story book about a little tiger and a butterfly, and so to Luca’s family, the butterfly became Alessio, his identical twin brother. Alessio is always present, watching over Luca and the Foundation.

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