It’s been an exciting afternoon with lots of unexpected surprises.
It's been an exciting afternoon with lots of unexpected surprises. Luca is now safely tucked in to his own bed and the PD machine is doing its thing. Hoping for a restful night.
One step closer to coming home.
One step closer to coming home. Luca has been officially discharged from the Koala ward and will sleep in the hotel with Rob tonight. The equipment has been delivered plus 2 weeks worth of supplies, we are setting up his…
Not quite home yet but getting closer
Not quite home yet but getting closer! Luca's "cycler" has been moved into the hotel room and he is spending the night with me (and no nursing staff). Tonight I did the set up by myself and connected Luca with…
A long stay in hospital can be lonely and isolating
A long stay in hospital can be lonely and isolating, particularly when no visitors or siblings are allowed on the ward and all the wonderful RCH programs are closed. Fortunately the hospital is surrounded by lovely parklands and Luca has…
Luca is staying on the Koala Ward
Luca is staying on the Koala Ward which is for cardiac and renal patients (including many little babies). Luca is the only one currently on the ward on dialysis. He was quite chuffed to see a picture of himself on…
Luca has done his part
Luca has done his part toward being able to come home as soon as possible. He is getting back to his usual energetic, lively self and tolerating the dialysis (he has graduated from 14 hours overnight to 10 hours with…
On Friday Luca had a Tenckhoff Dialysis Catheter
On Friday Luca had a Tenckhoff Dialysis Catheter (a soft, thin, flexible tube) placed in his abdomen (peritoneum) through the stomach wall under general anaesthetic. The catheter tunnels along the abdominal wall to the outside to provide permanent access for…
This is the machine
This is the machine (minus the tubing) that will be taking over the job of Luca's kidneys whilst we find a kidney for him. It's called a "cycler" and Luca will be connected to it whilst it infuses the PD…
Sometimes the best plans in life
Sometimes the best laid plans in life don't work out and you have to take a new path towards your goal. Our goal of finding a suitable kidney donor for Luca has not changed but the pathway toward achieving that…
Celebrating 150 Years of The Royal Children’s Hospital
February 22nd 2020 What an honour it was to be guests at Government House to celebrate the 150th anniversary of the Royal Children's Hospital. Philanthropy has played a huge part in making the RCH one of the top 5 paediatric…
